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The 2021 FAST Global Summit & Gala, FAST Forward Together, will be an opportunity to (finally!) see each other in-person, to listen to the most current updates from FAST funded researchers, to hear directly from pharmaceutical companies regarding current and future clinical trials, and to discuss best practices in education and therapies. If you aren’t able to make the event in person, our summit be broadcasted live to our community around the globe and will be translated into several languages. The two-day event will conclude with an incredible gala that will allow our Angelman community an opportunity to gather with old and new friends to network and celebrate the amazing advancements we are making toward our mission of curing Angelman syndrome! The Gala is FAST’s signature fundraising event, funds raised at the gala go to support our collective mission to cure Angelman syndrome!

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PO Box 608,
Dowers Grove, IL 60515

*A detailed health and safety plan will be released in the coming weeks to provide attendees with additional information on the safety measures that will be included at the 2021 FAST Global Summit & Gala.

Summit & Gala  COVID-19 Protocol

FAST is excited to reunite the Angelman community at the 2021 Science Summit & Gala in Austin, TX from December 3 to 4, 2021. The safety of our community is our top priority. We have been adapting our plans based on new and evolving information through the recommendations of Travis County, the state of Texas and Centers for Disease Control and Prevention (CDC). We have put important measures in place to ensure the health and safety of our attendees during this event.

Before you arrive

  • If you feel sick, please stay home. Please refer to the CDC’s COVID-19 Self-Checker reference guide to assess any symptoms you may be experiencing.
  • Check your flight and travel arrangements. Each airline and transportation provider has outlined their own restrictions for the health and safety of travelers.
  • Ensure you have met the required health and safety requirements. All who participate in any capacity must provide the following:
    • proof of a negative COVID-19 test result* AND
    • proof of full vaccination**
  • Individuals under the age of 12-years-old will require a negative COVID-19 test only to accommodate for current vaccination age restrictions.
  • Submit necessary documentation, such as negative test results and proof of full vaccination, to the registration portal.
  • Have your digital or print registration confirmation ready when you arrive – the more prepared you are, the faster entry will be. Upon check-in, you will receive a waiver to complete before registering for the event.
  • Before the event, we will conduct inspections to ensure the venue is safe, clean and ready for the event. 

Arriving at the Science Summit & Gala

  • We ask that you fully comply with applicable CDC COVID-19 health and safety measures and protocols for attendance at the event.
  • Have you completed a daily self-assessment, and are you symptom-free? If you feel sick, please stay home. You can refer to the CDC’s COVID-19 Self-Checker reference guide for any questions on symptoms by clicking here.
  • Social distancing requirements will be in compliance with the venue/facility guidelines.

Inside the event

  • Given the surge in cases due to the Delta variant, masks are required to be worn by all individuals, regardless of COVID-19 vaccination status. Individuals with Angelman syndrome will not be required to wear a mask.
  • Please follow all recommended health and safety measures, including washing your hands often, covering your cough or sneeze and staying home if you are sick. We will have sanitation stations located throughout the venue.
  • Daily disinfecting will take place to sanitize all seating, restrooms and frequently touched public areas.
  • Sanitation stations will be located throughout the event in public spaces, foyers and meeting spaces.

Local Health & Safety Information

Ride Share Health & Safety Messaging


Other Resources

Please note that each individual airline has outlined their own mandates. Each guest should check with their respective airline for COVID-19 protocols.

We are continuously monitoring recommendations from local health authorities and the CDC for essential large group meetings and events, and anticipate that changes will be made between now and December. We recommend that our attendees continue to review local and venue mandates and protocols frequently for the latest updates on occupancy levels, PPE & wearing masks, social distancing, cleaning protocols and other important information.

*Attendees must submit their test results to the registration portal prior to arrival. The only accepted COVID-19 tests are either PCR (also called diagnostic or molecular) or rapid antigen test (frequently referred to as “rapid test”). The tests must be conducted by a lab and within 72 hours prior to arrival at the Summit & Gala. 

**For unvaccinated individuals with medical exemptions, a doctor’s letter with written medical exemption will be accepted in lieu of vaccination. For individuals that have tested positive within 90 days of the Summit and Gala, a positive antibody test can be submitted in lieu of vaccination. Only vaccines authorized and recommended by the Centers for Disease and Prevention for use in the United States can be used as proof of vaccination. The date of the second dose of a two-dose vaccination (Moderna or Pfizer-BioNTech/Comirnaty) should be on or before November 18, 2021. The date of single dose vaccination (Johnson & Johnson) should be on or before November 18, 2021. Although it isn’t recommended, the CDC recognizes there are unique circumstances in which individuals have received different vaccines. Those individuals are considered fully vaccinated.

Gala Guide to Austin

When you plan a trip to a city with this much to do, it can be hard to pick and choose; let us help you figure out the details.

Lady Bird Lake (Town Lake) Kayak, Paddle & Canoe Rentals.

Experience the Best View in Austin. From Mount Bonnell you have awesome views on Austin, the Colorado River and the Hill Country
Zilker Metropolitan Park is considered “Austin’s most-loved park.” This 351-acre metropolitan park is home to a variety of recreation opportunities.

This vibrant neighborhood south of Lady Bird Lake oozes homespun character and boasts the story of Austin’s yesteryear in its boutiques, eateries, galleries and music venues.

As the Botanic Garden of Texas, the Center displays native plants from across the state in its gardens and arboretum and serves as a model for creating beautiful, sustainable landscapes.

Embark on an adventure to some of Austin’s major landmarks, quaint neighborhoods, and hidden gems that only the locals can show you. Ride through town in a comfortable van, and even get a tasty treat from one of Austin’s signature food trucks.

Cruise into the wide-open beauty of Texas Hill Country and sink your teeth into scrumptious barbecue and sample local wines on this convenient tour out of Austin.

Summit & Gala  Keynote Speakers

Dr. Ed Weeber

Dr. Ed Weeber has devoted over 20 years to Angelman syndrome research and has been a staple in our community since the beginning. In 2007, Dr. Weeber’s paper showing a rescue of the symptoms in the Angelman syndrome mouse gained him the prestigious Scientific Highlight of the Year from the Federation of European Neuroscience Societies.

Dr. Jan Nolta

Dr. Jan Nolta is the Director of the Stem Cell Program at UC Davis School of Medicine, and directs the new Institute for Regenerative Cures. The UC Davis stem cell program has over 145 faculty members collaborating to work toward stem cell-related cures for a spectrum of diseases and injuries. Her group focuses on “bench to the bedside” research, and she has been involved in numerous clinical trials of gene and cell therapy.

Dr. David Segal

Dr. David Segal has been one of the biggest cheerleaders for FAST for years. He runs marathons for FAST, rides 77 miles on a bike for FAST and participates in everything FAST related. He is a brilliant and collaborative neuroscientist that focuses on gene and epigenetic editing to treat neurologic disorders. His concentration is on genetic engineering using CRISPR/Cas nucleases, TALE, zin fingers and other transcription factors with a huge component of his work focusing on AS and being a key player leading FAST’s International AS Infrastructure at UC Davis. He is part of the NIH somatic cell genome engineering consortium and has received millions of dollars in government funding to accelerate his work in AS.